We asked our Mighty community to share some of the things doctors didn’t tell them about fibromyalgia. Let’s raise awareness and improve our understanding of the illness so doctors can better prepare their patients for the road ahead.
Here’s what the community told us:
1. “They don’t really understand fibro. It varies so much from person to person, and treatment plans are different for everyone, so there are lots of things doctors don’t know about this condition yet.”RELATED STORIES
2. “You [might] lose friends because you can’t go to every event you used to. But the friends you do keep are amazing and super understanding.”
3. “I actually had a great doctor when I was diagnosed because his wife has it as well. He told me the good, the bad and the ugly. He did also admit that most doctors including himself don’t fully understand it like they should.”
4. “They won’t [always] take other health issues seriously because ‘it’s probably just a symptom of fibromyalgia.’”