A lot of information comes up when you Google “fibromyalgia” — associated symptoms, treatment options and the like. It’s probably similar to what a doctor might tell someone recently diagnosed. But a lot goes unmentioned — things you might not know unless you have fibromyalgia or love someone who does. And even then, as is true with many chronic illnesses, there are things people who have it just don’t talk about.
We asked people with fibromyalgia in our community to share one thing not often talked about when it comes to having this disease. Every answer offers more insight into this misunderstood illness — and hopefully increases awareness and advocacy in the process.
1. “There’s a lack of knowledge about fibromyalgia in the medical community.” — Kayleigh May Meek
2. “It can negatively effect a person’s sex life and relationship issues may arise because of this. I have found this to be the most isolating part of the diagnosis.” — Alison Taylor
3. “It is so much more than having to accept not feeling good or having to take medication. Regardless of interest or motivation, it cuts down on your life and what you can do, and what goals you can set and ultimately changes how you see yourself.” — Mary Lynne Mountjoy
4. “It is a real chronic illness. It is not something doctors tell patients just because they do not know what the true problem is.” — Lexi Potte
please share it.thanks